A sassy, crafty mama bird from Los Angeles
raising a very sweet little girl with Autism
and a new baby boy in the Midwest... and other stuff, too.

Thursday, June 20, 2013

Never Give Up

Ben modeling his Never Give Up shirt from TheGSF.org
It's been a while since I've shared about a tiny hero I know, Gwendolyn Strong, and the Gwendolyn Strong Foundation. Gwendolyn is a 5 1/2 year old little girl who, like many other little girls, loves princesses and ponies and playing with friends. But, unlike many other little girls, lives with a degenerative muscle disease. Spinal Muscular Atrophy (SMA) is the #1 genetic killer among young children. The body's muscles degenerate, but the mind always stays intact. 

I have known Gwendolyn's mommy since Jr High School and I've been following along with their story for years. I've become enthralled with Victoria and Bill Strong's devotion and tenacity, no doubt fueled by Gwendolyn's unbreakable fighting spirit. 

The Gwendolyn Strong Foundation has brought more awareness to SMA in just a few years than ever before. 1 in 40 people carry the SMA gene. That's one person in every Starbucks! Are you a carrier?



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