We did it! We saw Dr. Kenneth Bock at the Rhinebeck Health Center.
He. Was. Awesome.
A very nice, fun guy who knows what he's talking about. He spent about an hour talking to us and getting Little Bird's history. Then we went over her test results (MRIs, Genetics, Muscle Biopsy, metabolic panels, IgG, IgE, and on and on) and medical reports. Greg voiced all his skeptical concerns and Dr Bock was understanding and patient and assured us that LB is no guinea pig and that he's seen great results with loads of kids. The he spent about 30 minutes dictating his notes and putting together a regimen of supplements and meds for the bird. He came back for a quick physical exam. Pretty easy and straight forward. Dr Bock and LB even shared a little giggle when she showed off her beat-boxing skills (thank you yo gabba gabba).
Then we headed out to the lab station to pick up a few kits so I can play lab tech (been a few months since I've had biohazard bags in my kitchen), sending poop and pee in little FedEx bags across the country. Got a script for a whole lot of other blood draws to be done when we get home. Next stop: the supplement station. There were WAY too many bottles to come home with me, so it looks like I'll be getting a big package in the mail in the next few days. We are adding A LOT of stuff. I can hardly even remember what everything is; only thing I remember is that we will be rotating FOUR different probiotics- a different one each day. We are also going to try the B12 shots again and we'll do a course of vancomycin and nystatin. We've never done either, so I'm nervous about that.
Last stop was the check out counter where I spent a mortgage payment and made 2 follow up appointments by phone.
We'll probably head back in a year or so. But for now, goodbye Rhinebeck, and thank you!!