A sassy, crafty mama bird from Los Angeles
raising a very sweet little girl with Autism
and a new baby boy in the Midwest... and other stuff, too.

Monday, December 13, 2010

The Rhinebeck Chronicles pt4

We did it! We saw Dr. Kenneth Bock at the Rhinebeck Health Center.

He. Was. Awesome. 

A very nice, fun guy who knows what he's talking about. He spent about an hour talking to us and getting Little Bird's history. Then we went over her test results (MRIs, Genetics, Muscle Biopsy, metabolic panels,  IgG, IgE, and on and on) and medical reports. Greg voiced all his skeptical concerns and Dr Bock was understanding and patient and assured us that LB is no guinea pig and that he's seen great results with loads of kids. The he spent about 30 minutes dictating his notes and putting together a regimen of supplements and meds for the bird. He came back for a quick physical exam. Pretty easy and straight forward. Dr Bock and LB even shared a little giggle when she showed off her beat-boxing skills (thank you yo gabba gabba).

Then we headed out to the lab station to pick up a few kits so I can play lab tech (been a few months since I've had biohazard bags in my kitchen), sending poop and pee in little FedEx bags across the country. Got a script for a whole lot of other blood draws to be done when we get home. Next stop: the supplement station. There were WAY too many bottles to come home with me, so it looks like I'll be getting a big package in the mail in the next few days. We are adding A LOT of stuff. I can hardly even remember what everything is; only thing I remember is that we will be rotating FOUR different probiotics- a different one each day. We are also going to try the B12 shots again and we'll do a course of vancomycin and nystatin. We've never done either, so I'm nervous about that.

Last stop was the check out counter where I spent a mortgage payment and made 2 follow up appointments by phone.

We'll probably head back in a year or so. But for now, goodbye Rhinebeck, and thank you!!


Penny said...

I want to hear aaaaallllllll about everything!

Heather said...

I'm so excited for you guys and can't wait to hear how it all goes...

we did B12 shots for a short period a few years ago- I struggled with them :/

Lynn said...

Very exciting. Very overwhelming. Glad that you liked him. I liked him a lot. Did you talk tribal stuff?

Ashley said...

Sounds like a very successful trip. We might have to look into trying to get an appointment with a DAN! doctor. The closest one is about 4 hours away, but my in-laws live there. So that seems like nothing compared to your trip. Glad it all went well!

Ashley said...

Sounds like a very successful trip! We might have to look into something similar. Our closest doctor is about 4 hours away, but my in-laws live there. Seems like no big deal at all compared to your trip! Glad it went well!

Dianne said...

I'm with Penny......please post everything. We also have a ASD child.
Thank you, and God bless.

Kristine said...

So glad to hear it went well. Definitely nice after travelling such a long way! I'm waiting for all the deets too!!

Laura @ The Things I Said I'd Never Do said...

Oh I am so glad that it went well and you didn't travel all that way for a jerky butthead of a doctor. I'm so interested to see how LB does on this new regimin.

Also, I didn't know fed ex shipped human waste. Learn something new every day!

Jessica said...

Wow, I'm sure your head is spinning with all of the new info, supplements and tests. Can't wait to hear how things progress. We did nystatin and the b12 shots and I was nervous about both but things went fine. We ultimately switched to a b12 cream which was much easier and got the same results as the shots but I was told that doesn't always happen.

Good luck and update often!

Deann said...

Hey girl!

I do the B12 shots and do find it works well for me as my body does not produce enough. Also, has the lil one's Vitamin D been tested? That is my latest quest in medical land. With taken 750% (yes 750) of the daily suggested intake, I was still half of what I should be (ie my body is probably producing NO vitamin D.) Those 2 vitamins are essential in living (IE my lack of it...lol).

MommyToTwoBoys said...

It sounds like you are excited and that is great! I can't wait to hear your progress updates. We have done no biomed interventions except some diet stuff. Please keep us posted. I loved reading the chronicles. Sounds like you had a fun trip.

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