A sassy, crafty mama bird from Los Angeles
raising a very sweet little girl with Autism
and a new baby boy in the Midwest... and other stuff, too.

Sunday, August 1, 2010

The next level

Well, I've written about how frustrating it is when we parents aren't taken seriously by the doctors who are meant to be caring for our children. They think we're nuts for trying some of the things we've tried. They don't know our kids like we do. They probably also don't know desperation.

When the "best pediatric GI doc in town" told me last week that he's certain the Little Bird gets extra scripty, flaps more, spins and bangs her head, can't focus or sit still after going 2 or 3 days without pooping, he suggested that it must be because she's not comfortable. Moms like me know it's has a lot to do with the toxicity of the leaky gut (something I'm certain this doc is not willing to learn about or acknowledge). After all, his long-term solution was to give her laxatives and stool softeners every day. When I asked "for how long?" the answer was, "indefinitely." Do you agree with me that this is not the right answer? How can someone tell me to keep my kid on laxatives AND softeners forever? That's your answer? I'm blown away. Here's a kid on his case load with chronic constipation and his answer is laxatives every day? No interest in discovering WHY this is happening and helping to fix the problem? This seems like a trend to me: trying to treat symptoms alone without getting to the root of the problem and working on it from there.

I'm giving up on this physician. It's time to take it to the next level. I'm ready to head to New York to see the doctor who wrote a book I love, a book that my friend Susan and I call "the bible." Healing the New Childhood Epidemics" is by Kenneth Bock. He runs a clinic out of Rhinebeck, NY. We will head out there in December. That's when we could get in. I've been thinking of going to see him for a few months now. But, this experience last week paired with this post by Heather made me realize that it's time. So, I'm going to look into airfare and get a room in Rhinebeck. Special thank you to Chelsea Clinton's wedding coverage for giving me great ideas of where to stay and things to do on my visit to Rhinebeck!

11 comments:

Heather said...

The best book ever!!!! I have read it several times and loaned it out to a variety of people- Dr. Bock was who I dreamed about going to see one day w/B but life has a way of changing those plans lol. I can't wait to hear all about it in December!

Laura @ The Things I Said I'd Never Do said...

Yay! I am so glad you have the opportunity to see someone that will actually listen.

Lynn said...

I agree with you...how could it be that a little girl needs to be on laxatives for the rest of her life? I think you will like Dr. Bock...try not to be too starstruck.

Melissa (Betty and Boo's Mommy) said...

Definitely, time for a different doctor. That's ridiculous to suggest keeping her on laxatives and stool softeners "indefinitely."

Hope you find the answers you need.

tulpen said...

Again, I've lucked out with my kids set of diagnoses and the awesomeness that is his surgeon Rusty.

I hope this trip to NY helps Little Bird and restores your faith in doctors.

Lynn from For Love or Funny said...

No doubt, looking out for our child's well-being is so important. It's sad that we have to do so even in the pediatrician's office, but that's probably the one place where we really have to be on our toes. Disagreeing with a doctor's diagnosis is one of the most difficult things I've ever had to do as a parent. I'll be thinking of you as you endeavor to find a better treatment plan for your precious little girl. (Stopping by from SITS.)

Piscesgirl said...

It is awful that the doctor is not willing to be more helpful, especially when you consider the rediculous paychecks they recieve for telling you to give you kids laxitives for life! I pray that you will have a much more helpful time with Dr. Bock. Good luck girl!

sugar magnolia said...

Good luck! Kudos to you for not taking "no" for an answer, and for seeking answers to the underlying causes. I hope this new doctor helps!

Devon said...

Let me know if you need/want company! Or someone to fan you while you sweat and gush over this superstar doc!

Anonymous said...

Woohoo! Good for you, Dani! LB is such a lucky girl to have a warrior mom such as yourself!! Keep fighting the good fight! xoxo Jenn G

Gala said...

Hi,

I've been reading and enjoying your blog for a while, ... don't remember how I found it..

You might have tried it already...
Replacing cow's milk with soy/almond milk in my kids diet solved the problem.

Gala

Related Posts with Thumbnails

See, it's not just my mom! (since Jan 1, 2010)