A sassy, crafty mama bird from Los Angeles
raising a very sweet little girl with Autism
and a new baby boy in the Midwest... and other stuff, too.

Wednesday, March 10, 2010

The Mad World of Autism

-Tears for Fears (but obv I like Gary Jules' cover better)***


The Autism world is a Mad World. A mad, mad, mad, mad world. One of the most maddening things about Autism, developmental delay, whatever you wanna call it, is that you never know what you're gonna get. Just like my friend Susan always says, "gimme two days that are the same." You know that Forrest Gump quote, "life is like a box of chocolates, you never know what you're gonna get"?? Well, a kid with ASD is like a box of chocolates, too. Because yesterday was an awful day. Awful. Today? Fabulous. I'm talking a-may-zing. My bird has had no accidents (day's not over, I know), and she had the most wonderful session with her play tutor: initiating, following through, keeping engagement, and really playing. This morning she was at school when the director of special needs was giving a tour to an interested parent. They passed Little Bird's class walking to gym, and the director pointed out the kid with special needs in the class (LB), who was walking along and holding hands with her BFF, looking like any other kid. And right at that moment, as the mom looked over at the bird, LB wrapped her arms around her friend for a big hug. I think she was probably sold on the inclusion program right then and there. I think Little Bird should get a commission, no?
I remember that process. The feeling that my kid should be included with typical kids, to learn and grow along with them and from them; the fears that (s)he'll look, behave, learn differently and not fit in; the 'is this the right thing', 'what if it doesn't work out', 'there's no way my kid could do this... or is there' questions. I felt all those feelings a year ago right now when I first considered enrolling her in the inclusion program. When you're IN IT, it's just so hard to see any progress. But when I look back at that process we endured a year ago, and where she is now at school, it's pretty awesome.


***Do yourself a favor and click on the link in the lyrics. Great video.


5 comments:

sarah said...

love love love this pic...thank you for posting the good and the not so good. thank you for sharing of yourself and your life.

marlowe said...

So glad the inclusion program is such a positive experience for her! We have our own mad mad world here. Hope to run into you both more at FC--thought we might see you last night. Maybe for the concert on the 21st? Hoping for many more amazing days for your bird.

Acting Balanced Mom said...

ITA with the "life is like a box of chocolates quote" My 3.5 year old has ASD and he's got great days and not so great days.. he's in an inclusive preschool and loving the structure and camaraderie of school - we've seen leaps and bounds improvement in his social development with regular social interaction.

Found your blog through SITS and now a follower :)

The Grown-Up Child said...

Love those glasses! She's a superstar! I can't imagine how it must be for you to live your life in the unpredictable fashion you describe. I have two children and although it is suspected that my son has ADHD, I know that is nothing compared to the challenges you are facing.

But I do know what it is like to hold my breath every day that he goes to school hoping for a good day and not knowing how it will actually all turn out. Hate that.

I'm glad your daughter is doing so well. With an invested and loving parent like you, how could she not?

Happy SITS Sharefest.

Anonymous said...

GJ's version = much better. Agreed. Just catching up here :-)

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