A sassy, crafty mama bird from Los Angeles
raising a very sweet little girl with Autism
and a new baby boy in the Midwest... and other stuff, too.

Sunday, February 7, 2010

just trying to stay game

"Oh I keep pushing boulders
I stay game 'til sun'll shake my shoulders
Oh, I keep feeling older
I stay game, stay game, stay game"
-Harlem Shakes

It was just one of those days where I wonder how am I ever gonna take care of her as she gets older? I'm so scared about the future. How can I care for someone with little to no self care skills? I never thought I'd have a five year old who isn't toilet trained. Will I have a seven, twelve, or eighteen year old like that? As I was washing her hair in the bath tonight I thought, how will I do this when she's bigger? I'm only 5'1" and 100 pounds - ok, fine. 102. But still...  My back is already killing me. No clue what's up next...

3 comments:

Deann said...

If it ever gets to that point there are many different options out there for care nurses/people, etc. My student's parents are right in there. Its not easy, but it is their way of life. Brodie is still so young, you don't know what could happen. Her skills may be delayed more than impaired or not ever there. Or mastered skills may be sparatic. We don't know what will be tomorrow, all we can do is walk one foot in front of other and keep moving forward.

My name is Erin. said...

You've done such an amazing job so far, I imagine you'll face these and any other issues the same way. With determination and love and some days, with fear and exhaustion. And the world will continue to be a better place for having the both of you in it.

lori b said...

its the "what ifs" that keep me awake at night. running thru my mind like a speeding bullet. i guess we dont know the answers until it plays out. thats why we need to try to live in the moment. but its really hard to do that. brodie has so much going for her and such an amazing team you have put together to help her. that little bird has the best chances of soaring like an eagle one day!

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