A sassy, crafty mama bird from Los Angeles raising a very sweet little girl with Autism and a new baby boy in the Midwest... and other stuff, too.

Monday, December 7, 2009

In the trenches of Autism

We recently began walking down a new path and we've kicked up our biomedical experiments (I mean, they really ARE experiments) with Little Bird. I used to think that the biomedical movement was completely crazy and only for the really desperate families. And then I became desperate. So, a few weeks ago we added the Methyl B12 shots. I was so excited because I've heard so many stories about fabulous success with them. So, that wasn't our story, but I'm not giving up on it just yet. Many people take B12 for energy and to boost the immune system. Well, my bird got a little too much energy! She became so hyperactive and even started spinning in circles- something we haven't seen in months and months. So, we're putting the Methyl B12 on hold right now. A few weeks ago I did my best impression of a scientist in a lab and put Little Bird's pee and poop into test tubes and shipped them off to a few different labs all over the world. (Side note: when I sent Greg a pic of all this, his only response was "is that our kitchen counter?!") Well, the results are in and while it's WAY too scientific to discuss here, I will tell you that the most remarkable thing that came back was the outrageously high level of DHPPA. You may be asking yourself, "what the heck is DHPPA?" And so, my friends and dear readers, I give you this link. You can go ahead and read all about it. FUN! Later today we will begin around of Flagyl (an antibiotic) designed to combat the bacteria in Little Bird's little gut. We've spent the last week giving her a very potent probiotic called Ther-biotic Complete with 100+billion cultures. That's pretty intense! It's purpose is to create a healthier environment in her gut, especially as we are about to send in this antibiotic which will wipe out all kinds of bacterium (good and bad). The Flagyl has been known to produce a period of yeast die-off wherein symptoms can increase and worsen for a while. Basically, it can get a lot worse before it gets better. Not looking forward to that part. But a few of my friends who have gone through this swear by Flagyl and the results. I'm just hoping my little bird will feel better and get better really soon!! I'm extremely nervous about the die-off period. I'm worried just like I am every time we start something new. the thing is, kids with Autism are like snowflakes: no two are alike. That means that what works for one will not necessarily work for another. That's why this is all an experiment and I am on the front lines, in the trenches of Autism. Stay tuned...

3 comments:

My name is Erin. said...

Wow! I can't believe everything you're doing. It's amazing and I'm super interested in hearing more about it. I think I'm going to post a blog soon linking to this one. Is that cool with you?

Anonymous said...

Hoping this works in the long run. You are working sooo hard. Thinking of you everyday... my bird!

Dani G said...

Thanks so much, mommy (aka anonymous)!! I'm trying!

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