A sassy, crafty mama bird from Los Angeles
raising a very sweet little girl with Autism
and a new baby boy in the Midwest... and other stuff, too.

Friday, December 18, 2009

Got poop?

"Heaving on the boulder, just trying to move it an inch
I think I'm getting closer, I think I'm getting bolder
But then it starts to slip
And I keep making the same old faces again"
-Monsters of Folk
Here's another one of those in the trenches of Autism posts. This one has a lot of poop talk. We are on day 11 of Flagyl therapy. Yes, I expected things to get worse before they got better, but I did not expect it to get this much worse. I have been a completely miserable person for about oh, four and a half years. Kidding. Kind of. Actually, I've been a wreck for the past week. It's horrible to see your kid take giant steps- no leaps- backward when you're busting your fucking balls to help her make progress.
Anyway, basically the flagyl is meant to kill off bacteria in the gut. In doing so, it often arouses said bacterium and almost activates them. The key is to get them the hell out of the system. However, my kid so completely chronically constipated, so all those toxins are just sitting in her!!! She pooped on Monday, but hadn't again until last night (Thursday). She'd gotten to the point where she was not talking much, just scripting; spin spin, flap flap; tantrums. Last night she pooped twice, then this morning had some pretty massive diarrhea. By the way, if this talk makes you squeamish, you'd never last a day as a mommy of a kid with Autism. As soon as all that shit (literal) was out of her she was chatty, smiley, happy. It is absolutely impossible to deny the gut-mind connection when you see results like this. I'm going to pray like a madwoman that when I pick her up today I get a good report. I'm going to pray that her speech and play therapy sessions go well this afternoon.
I know that she does better when she poops and Little Bird's awesome pediatrician (shout out!) suggested we take her to a gastroenterologist who can help (hopefully) to get her pooping regularly. I called and got the earliest appointment... at the end of March!! That's 4 months away! Crazy, right? Ridic. I doubt the GI doc will be able to treat her the way she needs to be treated, since we really need to heal her gut as opposed to just running tests and then shrugging shoulders and passing us off to the next specialist in Western medicine. But, I'll give it a try. I mean, I've tried everything else, right?!
I'm preparing to travel for a while and I'm very concerned about how things will go with her while we are gone. There is no such thing as a vacation with her. It's often a lot more work than usual and don't get me started on what happens when we're off our schedule, away from structure and therapies. Thankfully we will be with family who love her and often times bring out the best in her.
This video is a snippet of a tantrum a few days ago. No clue what set it off, but it lasted about an hour or so. Notice the little wiggle - that's yeast! She has a little yeast rash on her tushie. Yeast in the gut doesn't just stay in the gut!!


Samantha said...

I think you're an amazing mom for a lot of reasons, but thing about your parenting style that I like best is your complete willingness to put videos of your kid having a shit fit on the Internet.

My name is Erin. said...

You have so been on my mind. I had a feeling you were going through some shit. Pun totally intended. Abby wanted to see the video of Brodie and she said that she "needs a tissue and maybe a blankie snuggle". That's what Abby wants when she is upset. I hope you got the good report today.

I sooooo know what you mean about traveling. Vacation? What's that? I hope your's goes as smoothly as possible. When will you be home, because we are planning a trip to Detroit and I'd LOVE, LOVE, LOVE to see you! (I would type "meet" you, but I feel like we're past that). Abby says she wants to meet Brodie.

Anonymous said...

I am so sad to see Brodie upset like this video shows her. But I am ready to see her soon and have open arms that hunger for her. Sounds dramatic, but really... I hunger! I am the "Grandma"!!

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