"Heaving on the boulder, just trying to move it an inch
I think I'm getting closer, I think I'm getting bolder
But then it starts to slip
And I keep making the same old faces again"
-Monsters of Folk
Here's another one of those in the trenches of Autism posts. This one has a lot of poop talk. We are on day 11 of Flagyl therapy. Yes, I expected things to get worse before they got better, but I did not expect it to get this much worse. I have been a completely miserable person for about oh, four and a half years. Kidding. Kind of. Actually, I've been a wreck for the past week. It's horrible to see your kid take giant steps- no leaps- backward when you're busting your fucking balls to help her make progress.
Anyway, basically the flagyl is meant to kill off bacteria in the gut. In doing so, it often arouses said bacterium and almost activates them. The key is to get them the hell out of the system. However, my kid so completely chronically constipated, so all those toxins are just sitting in her!!! She pooped on Monday, but hadn't again until last night (Thursday). She'd gotten to the point where she was not talking much, just scripting; spin spin, flap flap; tantrums. Last night she pooped twice, then this morning had some pretty massive diarrhea. By the way, if this talk makes you squeamish, you'd never last a day as a mommy of a kid with Autism. As soon as all that shit (literal) was out of her she was chatty, smiley, happy. It is absolutely impossible to deny the gut-mind connection when you see results like this. I'm going to pray like a madwoman that when I pick her up today I get a good report. I'm going to pray that her speech and play therapy sessions go well this afternoon.
I know that she does better when she poops and Little Bird's awesome pediatrician (shout out!) suggested we take her to a gastroenterologist who can help (hopefully) to get her pooping regularly. I called and got the earliest appointment... at the end of March!! That's 4 months away! Crazy, right? Ridic. I doubt the GI doc will be able to treat her the way she needs to be treated, since we really need to heal her gut as opposed to just running tests and then shrugging shoulders and passing us off to the next specialist in Western medicine. But, I'll give it a try. I mean, I've tried everything else, right?!
I'm preparing to travel for a while and I'm very concerned about how things will go with her while we are gone. There is no such thing as a vacation with her. It's often a lot more work than usual and don't get me started on what happens when we're off our schedule, away from structure and therapies. Thankfully we will be with family who love her and often times bring out the best in her.
This video is a snippet of a tantrum a few days ago. No clue what set it off, but it lasted about an hour or so. Notice the little wiggle - that's yeast! She has a little yeast rash on her tushie. Yeast in the gut doesn't just stay in the gut!!