My friend Marni got a new tattoo this week. It says "This Too Shall Pass." This saying has beautiful meaning to her and reminded me that it's one of those sayings that can have great meaning to so many. I'm really "in it" and when we're really "in it", little reminders to get us through it really help.
A lot of friends are asking me what's going on, so here's the deal... My little baby bird is going through a very major regression. Without getting into specifics, just know that the word regression is the opposite of progression. Basically instead of moving forward, she's going backward. It's absolutely killing me. I'm devastated and completely puzzled. I saw a sign that said "children are like snowflakes: no two are the same". This truth should be totally exaggerated for kids with Autism. If you know nothing about Autism, let me tell you that there's a reason its a spectrum disorder. Two kids with the same diagnosis can be extremely different. Not all kids with Autism are non-verbal, non-social, don't make eye contact, flap their arms, cover their ears with loud noises, are savants, or bang their heads. I could go on and on. My point is that the whole disorder of Autism has no rhyme or reason and makes NO sense! You could only imagine how frustrating this is on a mommy. Anyway, you've probably heard loads of stories of kids who progressed typically as babies, hitting all their milestones, etc. Then around 18 months or 2 years they seemed to lose skills, language, eye contact, social connection, etc. If you haven't heard these stories, then where have you been?? Today 1 in 150 kids is diagnosed with having an Autism Spectrum Disorder and 1 in 94 boys are diagnosed. But I digress.... Anyway, my kid was NOT one of those kids to develop normal and then regress. She's always been developmentally delayed, hitting milestones, but very late. She's never regressed EVER- only slow, steady progress. Now all the sudden, this major regression. WTF, right? No one can figure it out- especially me.
So, if I've RSVP'd NO to your kids' birthday parties, canceled plans, or left events early, that's why. Things aren't going so well right now. But the good news is that This Too Shall Pass. I am doing all the right things and all the footwork necessary, I am praying, hoping, doing extra mitzvot, and trying to have faith that we will get through this. Thanks to all my friends for your support and for your encouragement. I'll keep you posted. That is, after all, the point of this little blogging adventure, right??