There's a great reason why so may Autism groups use a puzzle piece as their logos.... it's a freaking puzzle!!! Navigating the spectrum of Autism is almost impossible because none of it makes any sense. Don't even get me started on how not ALL of Little Bird's therapists and docs agree that she even has an ASD (Autism Spectrum Disorder). It's a spectrum disorder and the spectrum is very broad. It's so unclear and there is so much that we don't know about it. The whole experience is so confusing. It's day to day. Remember what I said about a roller coaster? Somedays you're up, somedays you're down. You never know what will happen in between.
My friend Alexis gave me a hug tonight (thanks Alexis!!) and said she's been thinking of me since reading my last post about my daughter and her recent regression. That reminded me that I need to update people because I forget that there are so many people who love us, care about us, and follow our journey. I know you're there, but sometimes I forget. Here's the deal... School started last week and the teachers and therapists were totally freaked out by the change in my kid. What happened to all the skills she'd gained in the last few months? Where are all her words? Where's her voice? What's with the sensory seeking? Seeing them scared left me even more freaked out!!! Thank G-d, by the end of last week we saw the twinkle in her eye return. By this Monday, she appeared to be coming back. Even Jessica, the most-awesomest Occupational Therapist here said that she can tell Little Bird's coming back because her sassy attitude was present. Today I feel like she is well on her way back to her regular old self!!
This has been a great lesson for me because I now know that it's pretty normal for kids to go through regressions now and then; and I now have experience to know that when it happens, it's not permanent. I called Adam B (a great play therapist we work with) and he assured me that his phone rings off the hook during holiday breaks, spring break, and summer because kids have a tough time when they're off their routines. Even "typical" (or as I like to say "common" or even "boring") kids regress every now and then when there's a big change. But since I'd never been there, I didn't know!!
For today, I'm pleased to see progress
For today, I'm working on continued progress
For today, I'm finding beauty in our differences (I've never liked fitting in anyway)
For today, I'm fighting my ass off to treat my baby's issues
For today, I'm gonna keep on keeping on
For today, I'm just grateful that she's baaaaaaaaaaaaack!!